How to Treat Narcolepsy

How to Treat Narcolepsy

Diet, Lifestyle, Mindset, Narcolepsy
There are a million resources out there that will tell you how to treat narcolepsy medically including various stimulants, Baclofen, or Xyrem. There are also some new medications being tested that sound promising. For some people, when they receive the right combination of medications, their narcolepsy is managed well and they go on with their life, which is amazing.  But for many of us, the medications alone don’t give us the results we desire. Physically our bodies are all different and mentally we are all in different places as well. So, it makes sense we all need different things to treat narcolepsy symptoms. (more…)
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From Self-Hate to Self-Love

From Self-Hate to Self-Love

Mindset, Personal Story
Her small hands hesitate just the slightest bit as they brush over the thick pink scars.  Brown eyes meet mine and then immediately flick back down to the rushing water of the pedicure chair. Her eyes pry, "What happened to you?" or "Who did this to you?" I can't be sure which. (more…)
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My New Year’s Revolution

My New Year’s Revolution

Mindset, Narcolepsy
Most New Year's Resolutions I have made in the past have been about changing myself.  They could be changing my appearance, like losing weight or taking better care of my skin. Others have been about making more money or saving more money in the hopes of feeling a certain way.  Some have been about exercising more, doing more meditation, or reading more books. But this year I am going to try something different. (more…)
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Breaking up with Keto

Breaking up with Keto

Mindset, Personal Story
So, I've got a theory.  A theory that I am ready to test out.  My theory is that my mind is more powerful than my body.  You see, my whole life I've worked to try to fix my body, trying to do things to it to make it better, to change it.  For as long as I can remember, I have fought with my body. Today I've decided to surrender. When I was about 13 years old, I was diagnosed with narcolepsy.  It was a diagnosis that my parents and I had been searching for over a number of years to explain the insurmountable sleepiness and lack of energy I was experiencing.  I took that diagnosis and wrapped it around me like a security blanket. It was the explanation for…
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How Narcolepsy Lead me to be a Digital Nomad

Mindset, Narcolepsy, Personal Story
Digital Nomad. It’s a label I’m not exactly fond of as it generally calls up images of social media influencers, relaxing on the beach, posting pictures that make everyone jealous.  While I do enjoy sharing my travel experiences, I am not quite on that level.  I am an English teacher who just happens to work online and use that advantage to travel as much as possible. But how did I get here? Was it a choice or am I really a hobo? (more…)
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Accepting Narcolepsy

Accepting Narcolepsy

Mindset, Narcolepsy
I believe I have tried almost everything available to treat narcolepsy. I have a strong desire to feel better. Like many people with narcolepsy, I am not lazy. I am actually overly ambitious and often do more than my body can handle and later face the consequences. I think I have worked pretty hard to feel as good as I feel now, but I always desire to feel better. (more…)
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Relieving Pain Naturally

Lifestyle, Mindset, Narcolepsy
When I say that I deal with pain every day, I think many people can relate.  We all have little aches and pains that plague us throughout our lives; that knee injury from highschool, back and shoulder pain from stress, or recurring headaches that can't be explained.  Even chronic pain has become a widespread issue affecting more than 100 million Americans, while remaining an invisible illness.  It doesn't receive attention because there is no way to compare levels of pain or measure how much it improves or gets worse. We all can believe our pain is worse than others' but that doesn't help us feel better. I assume that for anyone dealing with pain, it can cause severe exhaustion.  As a person with narcolepsy, when I have a headache or something…
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Freedom

Mindset
Prayer for Freedom from Suffering May all beings everywhere plagued with sufferings of body and mind quickly be freed from their illnesses. May those frightened cease to be afraid, and may those bound be free. May the powerless find power, and may people think of befriending one another. May those who find themselves in trackless, fearful wilderness-- the children, the aged, the unprotected-- be guarded by beneficent beings, and may they swiftly attain Buddhahood. This prayer is used in meditation sessions to help give clearer focus to the meditators’ intentions. This always rang true to me, even before I discovered meditation because I can identify with each stanza.  Since my diagnosis of Narcolepsy with Cataplexy, at times I have felt plagued with suffering, frightened, powerless, lost, and unprotected.  But I…
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Yoga with Adriene

Lifestyle, Mindset
Some days I feel so low I just want to lay down on the floor. It’s not just to have a nap, although sometimes I need that too! I used to think this was just a sign I was depressed, but now I see it as a message from my body. (more…)
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