How Narcolepsy Lead me to be a Digital Nomad

Digital Nomad. It’s a label I’m not exactly fond of as it generally calls up images of social media influencers, relaxing on the beach, posting pictures that make everyone jealous.  While I do enjoy sharing my travel experiences, I am not quite on that level.  I am an English teacher who just happens to work online and use that advantage to travel as much as possible. But how did I get here? Was it a choice or am I really a hobo?"What you choose also chooses you." Kamand Kojouri

When I tell the story of how I “escaped” from Indiana, the conservative place where I was supposed to grow up, I spin the tale as if it was a big brave decision to give up my belongings and fly across the world!  But, it is not really that simple.Indiana sunset with windmills

I was tired; exhausted really.  I have a chronic neurological disorder that impairs the brain’s ability to regulate the sleep-wake cycle, called narcolepsy.  The traditional 40 hour work week was torture for me.  Sure, I made it work because I needed medical benefits and as a college graduate it felt important to put real work experience on my resume.  But while I was juggling my office job along with various cash jobs to cover expenses, I was losing myself.

The first overseas trip was a 10-month commitment working 12 hours a week as a language assistant in Spanish primary schools as an Auxiliar de Conversacion.  I had no teaching experience but was assured I would never be left alone with the students, I would just be assisting.  This was the turning point for me. Before that experience, I imagined myself returning to the USA. I had my car and clothes in storage; just one foot out the door.

But of course, I fell in love with Spain. I renewed my contract for a second year in Huelva, and then a third in Malaga. I traveled a lot of Europe and a bit of Africa on the long and short holidays, and developed my side hustle teaching private classes in person first, and then online.

During those three years, I learned a lot about myself. But I also learned about how a health care system can support a person rather than drag them down. I learned about buying medication that I could afford out of my pocket, without enrolling in assistance programs or using my credit card so I could pay it off in the future.  I stopped checking the mail in fear, expecting more bills from long forgotten appointments.

I learned about more natural ways to reduce my symptoms that were never mentioned by my American doctors in more than 11 years of regular appointments. I started using food and diet to improve my quality of life and I got used to being able to buy fresh produce at a reasonable price all year round.80% of people with narcolepsy surveyed said living with narcolepsy is a daily struggle study from knownarcolepsy.com

Now when I think about returning to the United States, it is not about giving up my dream of traveling the world.  It is not the lack of beaches in Indiana or the snowy winters that I dread.  I worry about the quality of the food that I can afford. I think about waiting weeks to see a specialist for a routine appointment and getting a bill months later for hundreds of dollars.  I think about having to return to a 40 hour work week, which would probably require me to start taking medication again.

So this leads me back to the question, did I leave by choice or was I forced out by my chronic illness and my desire to live? Wyatt Edward Gates said, “ The digital hobo travels for the same reason analog hobos did: because staying put doesn’t make sense economically or psychologically; leases are a liability when work is so sporadic, and it’s easier to maintain hope when there’s always another place to go that might be better.” What do you think? Leave a comment to let me know.

Nomad or hobo?

4 Replies to “How Narcolepsy Lead me to be a Digital Nomad”

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.