Blog

Tell me how you take time to love yourself!

Tell me how you take time to love yourself!

Narcolepsy
Write down the five things that are most important to you in the whole world. I'll wait a moment while you do that…. If you are anything like me, your list may include values like independence or peace; it may consist of goals or aspirations, or people like your family or friends. But tell me, are YOU on that list? (more…)
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My New Year’s Revolution

My New Year’s Revolution

Mindset, Narcolepsy
Most New Year's Resolutions I have made in the past have been about changing myself.  They could be changing my appearance, like losing weight or taking better care of my skin. Others have been about making more money or saving more money in the hopes of feeling a certain way.  Some have been about exercising more, doing more meditation, or reading more books. But this year I am going to try something different. (more…)
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Breaking up with Keto

Breaking up with Keto

Mindset, Personal Story
So, I've got a theory.  A theory that I am ready to test out.  My theory is that my mind is more powerful than my body.  You see, my whole life I've worked to try to fix my body, trying to do things to it to make it better, to change it.  For as long as I can remember, I have fought with my body. Today I've decided to surrender. When I was about 13 years old, I was diagnosed with narcolepsy.  It was a diagnosis that my parents and I had been searching for over a number of years to explain the insurmountable sleepiness and lack of energy I was experiencing.  I took that diagnosis and wrapped it around me like a security blanket. It was the explanation for…
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Cataplexy in a Cathedral

Cataplexy in a Cathedral

Narcolepsy, Personal Story, Travel
Sharing a plate of fried watercress, a heaping dish of tea leaf salad, and a bowl of eggplant curry, I found myself saying more about my chronic illness than I ever expected to disclose on a first encounter. I heard myself explaining things my body does in words I had never strung together verbally before. Maybe it was the second glass of wine, or maybe it was the humid air, the colorful Myanmar decor, and the attentive listener on the other side of the able. He seemed genuinely interested in how a person with narcolepsy had come to travel as a lifestyle choice. (more…)
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Scared of the Dark: The Narcolepsy Symptoms That Nobody Talks About

Scared of the Dark: The Narcolepsy Symptoms That Nobody Talks About

Narcolepsy, Personal Story
One night around age eight, I was lying in bed thinking of the fun I had had that day with my family. I opened my eyes slowly to see a huge, hairy, manlike monster hovering above me on the ceiling. His appendages stuck to the plaster effortlessly, like a giant spider, and I could see his gigantic teeth waiting to sink into my flesh. I was completely paralyzed. So much that I couldn’t even scream. I lay there on my Care Bear sheets, trapped in my own body, unable to even clench my fists, or turn my head away from the terrifying sight above me. He dropped onto my chest, and I could feel the enormous pressure of his weight. The next thing I knew, it was morning. As a…
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How Narcolepsy Lead me to be a Digital Nomad

Mindset, Narcolepsy, Personal Story
Digital Nomad. It’s a label I’m not exactly fond of as it generally calls up images of social media influencers, relaxing on the beach, posting pictures that make everyone jealous.  While I do enjoy sharing my travel experiences, I am not quite on that level.  I am an English teacher who just happens to work online and use that advantage to travel as much as possible. But how did I get here? Was it a choice or am I really a hobo? (more…)
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Accepting Narcolepsy

Accepting Narcolepsy

Mindset, Narcolepsy
I believe I have tried almost everything available to treat narcolepsy. I have a strong desire to feel better. Like many people with narcolepsy, I am not lazy. I am actually overly ambitious and often do more than my body can handle and later face the consequences. I think I have worked pretty hard to feel as good as I feel now, but I always desire to feel better. (more…)
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People First Language Matters

Narcolepsy
Have you ever been called names?  Have you heard someone describe you in a way that didn’t sit well with you? Your first instinct may have been to go back to the schoolyard saying, "Sticks and stones may break my bones, but words will never hurt me." Unfortunately, that is not true. (more…)
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Tips for Riding a Sleeper Bus in Vietnam

Tips for Riding a Sleeper Bus in Vietnam

Personal Story, Travel
Before my sleeper bus experience, I had never imagined being asked to take my shoes off as I entered a public bus.  But when you get on an overnight sleeper bus, it makes a lot of sense.  An attendant held out a black plastic bag for me to place my shoes in. I continued barefoot down the aisle to my very own reclined sleeper seat. (more…)
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