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Tips for Traveling With Narcolepsy

Tips for Traveling With Narcolepsy

Narcolepsy, Travel
Don't Travel Tired Do you worry about traveling with narcolepsy? Traveling tired can be dangerous. I feel like I am a smart traveler and pay attention to my surroundings. But once the sleep starts creeping in its easy to start letting my guard down and focus on staying upright.  (more…)
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Đồng Xuân Night Market, Hanoi

Đồng Xuân Night Market, Hanoi

Personal Story, Travel
Visiting markets is one of my favorite things to do when I travel.  Of course I also like to browse grocery stores looking for new and interesting keto friendly foods, but nothing has the same ambiance as a local market.  Hanoi didn’t disappoint! The weekend night market opens at 19:00 (7:00 PM) on Fridays, Saturdays, and Sundays and is frequented by both locals and tourists alike. Cultural Experience  The weekend night market runs all along Hang Dao Street in the Old Quarter of Hanoi and ends near the entrance of the Dong Xuan Market building.  Near the front of the building, there was a stage with performances of local music.  Both tourists and locals were gathered around the stage trying to get a good view.  Performances vary, I even heard…
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EFT for Narcolepsy

Lifestyle, Mindset, Narcolepsy
When I say that I deal with pain every day, I think many people can relate.  We all have little aches and pains that plague us throughout our lives; that knee injury from high school, back and shoulder pain from stress, or recurring headaches that can't be explained.  I even include emotional pain in this definition. Physical chronic pain has become a widespread issue affecting more than 100 million Americans while remaining an invisible illness.  It doesn't receive attention because there is no way to compare levels of pain or measure how much it improves or gets worse. We all can believe our pain is worse than others' but that doesn't help us feel better. (more…)
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Yoga for Narcolepsy

Yoga for Narcolepsy

Lifestyle, Mindset
Using yoga for narcolepsy is more feasible for me than other exercise regiments. Some days I feel so low I just want to lay down on the floor. It’s not just to have a nap, although sometimes I need that too! I used to think this was just a sign I was depressed, but now I see it as a message from my body. (more…)
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Do You Use Mindfulness for Narcolepsy?

Do You Use Mindfulness for Narcolepsy?

Mindset
An elderly Myanmar man was dangling his parasol from one finger while he placed his hands on his back and swiveled his hips in a circle, stretching.  I felt myself smiling.  Another middle-aged couple was barefoot in the grass performing some exercises together in the morning breeze.  Young boys on bicycles whizzed by and plenty of locals were relaxing by the water on shaded benches.  Loving Myanmar Today I set out on a walk having no idea where I wanted to go.  It was early and I wanted to take advantage of some cool air before the sun burned through the haze and turned the sidewalk into a human frying pan. I set out around the lake, focused on my breath, and tried to let the thoughts that entered my…
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Going Keto

Going Keto

Lifestyle, Mindset, Uncategorized
I have tried to start with the easy stuff. Not easy to do, but easy to swallow and say, okay this is simple enough I’ll at least try.  And most of these are beneficial to anyone and everyone, regardless of if you have narcolepsy or another illness or if you are the healthiest person in the world!  There are plenty more to talk about. But not everything I have done to radically change my life has been so simple. Sometimes to get radical results we have to make radical changes.  The biggest one, I know many are resistant to or have some reason that it is not feasible for them, so I will not judge you if this is not for you.  But even if my way isn’t the way…
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Loving Myself with Narcolepsy

Loving Myself with Narcolepsy

Mindset
Maybe the most important lesson I have learned about feeling better is just loving myself with narcolepsy.  I'm not going to lie and say it's easy.  But I do think this is especially important for people with a chronic illness. I have ups and downs and I'm constantly working to try to do it more consistently.   It's easy to get into negative patterns and tear ourselves down. It takes a lot of practice to reverse that so that we are consistently giving ourselves positive messages. (more…)
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Before Going Keto – Try This!

Diet, Lifestyle
Maybe at this point, you are thinking about trying the keto diet out for yourself.  Have you read about what you can do before going keto?  You may be feeling positive about your future and believe you are ready to take the plunge.  If so, that’s great! Go for it! If you are a bit more hesitant, here is my advice on some smaller changes you can make before going keto, or even deciding if it is right for you. Tips to try before going keto Eliminate Sugar from your diet [caption id="attachment_990" align="alignright" width="300"] Keto fruit pizza![/caption] Start with sugar.  First the big stuff, like sugary beverages and sugar-filled desserts.  Pay special attention in the morning and monitor your energy levels.  Later you can start reading labels and finding…
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Positive Affirmations

Positive Affirmations

Mindset
Harsh rays of sunlight are scratching at my eyelids, begging to be let in.  I squint trying to lift the heavy lids and figure out where I am at.  It doesn't feel like my pillow or my bed, and my window faces West. I'm never harshly woken like this in the morning. It's a hotel, and the "blackout curtains" they boasted about on their page do not reach the ceiling.  It must be nearly 7:00 am anyway, so its time to wake up. Even on vacation, I don't dare sleep in and disturb my circadian rhythms.  That would send me crashing into a cycle of narcolepsy symptoms that I don't like dealing with.   I can read all the tips for wakefullness in the world and work on my sleep…
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Give Yourself Permission to Rest

Give Yourself Permission to Rest

Mindset
How many of us feel guilty when we can't do all that we think we should do? Why put yourself second? I don’t think you have to have an illness to have this experience. Whether it’s commitments at work, with your friends, or with yourself, sometimes you just aren’t up for what you have planned.  Most of us tend to cut out what we planned to do for ourselves to not let others down. Self-Care Benefits Everyone But if we don't take care of ourselves, we won't be at our best to do our jobs or to be a good friend.  PWNs (People with Narcolepsy) may be able to relate to this scenario: You go out with your friends when you are too tired. Later you have almost no recollection…
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