Accepting Narcolepsy

Accepting Narcolepsy

Mindset, Narcolepsy
I believe I have tried almost everything available to treat narcolepsy. I have a strong desire to feel better. Like many people with narcolepsy, I am not lazy. I am actually overly ambitious and often do more than my body can handle and later face the consequences. I think I have worked pretty hard to feel as good as I feel now, but I always desire to feel better. (more…)
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Loving Myself with Narcolepsy

Loving Myself with Narcolepsy

Mindset
Maybe the most important lesson I have learned about feeling better is just loving myself with narcolepsy.  I'm not going to lie and say it's easy.  But I do think this is especially important for people with a chronic illness. I have ups and downs and I'm constantly working to try to do it more consistently.   It's easy to get into negative patterns and tear ourselves down. It takes a lot of practice to reverse that so that we are consistently giving ourselves positive messages. (more…)
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Positive Affirmations

Positive Affirmations

Mindset
Harsh rays of sunlight are scratching at my eyelids, begging to be let in.  I squint trying to lift the heavy lids and figure out where I am at.  It doesn't feel like my pillow or my bed, and my window faces West. I'm never harshly woken like this in the morning. It's a hotel, and the "blackout curtains" they boasted about on their page do not reach the ceiling.  It must be nearly 7:00 am anyway, so its time to wake up. Even on vacation, I don't dare sleep in and disturb my circadian rhythms.  That would send me crashing into a cycle of narcolepsy symptoms that I don't like dealing with.   I can read all the tips for wakefullness in the world and work on my sleep…
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