EFT for Narcolepsy

Lifestyle, Mindset, Narcolepsy
When I say that I deal with pain every day, I think many people can relate.  We all have little aches and pains that plague us throughout our lives; that knee injury from high school, back and shoulder pain from stress, or recurring headaches that can't be explained.  I even include emotional pain in this definition. Physical chronic pain has become a widespread issue affecting more than 100 million Americans while remaining an invisible illness.  It doesn't receive attention because there is no way to compare levels of pain or measure how much it improves or gets worse. We all can believe our pain is worse than others' but that doesn't help us feel better. (more…)
Read More

Freedom

Mindset
Prayer for Freedom from Suffering May all beings everywhere plagued with sufferings of body and mind quickly be freed from their illnesses. May those frightened cease to be afraid, and may those bound be free. May the powerless find power, and may people think of befriending one another. May those who find themselves in trackless, fearful wilderness-- the children, the aged, the unprotected-- be guarded by beneficent beings, and may they swiftly attain Buddhahood. This prayer is used in meditation sessions to help give clearer focus to the meditators’ intentions. This always rang true to me, even before I discovered meditation because I can identify with each stanza.  Since my diagnosis of Narcolepsy with Cataplexy, at times I have felt plagued with suffering, frightened, powerless, lost, and unprotected.  But I…
Read More

Yoga with Adriene

Lifestyle, Mindset
Some days I feel so low I just want to lay down on the floor. It’s not just to have a nap, although sometimes I need that too! I used to think this was just a sign I was depressed, but now I see it as a message from my body. (more…)
Read More
Do You Use Mindfulness for Narcolepsy?

Do You Use Mindfulness for Narcolepsy?

Mindset
An elderly Myanmar man was dangling his parasol from one finger while he placed his hands on his back and swiveled his hips in a circle, stretching.  I felt myself smiling.  Another middle-aged couple was barefoot in the grass performing some exercises together in the morning breeze.  Young boys on bicycles whizzed by and plenty of locals were relaxing by the water on shaded benches.  Loving Myanmar Today I set out on a walk having no idea where I wanted to go.  It was early and I wanted to take advantage of some cool air before the sun burned through the haze and turned the sidewalk into a human frying pan. I set out around the lake, focused on my breath, and tried to let the thoughts that entered my…
Read More

Going Keto

Lifestyle, Mindset, Uncategorized
I have tried to start with the easy stuff. Not easy to do, but easy to swallow and say, okay this is simple enough I’ll at least try.  And most of these are beneficial to anyone and everyone, regardless of if you have narcolepsy or another illness or if you are the healthiest person in the world!  There are plenty more to talk about. But not everything I have done to radically change my life has been so simple. Sometimes to get radical results we have to make radical changes.  The biggest one, I know many are resistant to or have some reason that it is not feasible for them, so I will not judge you if this is not for you.  But even if my way isn’t the way…
Read More
Loving Myself with Narcolepsy

Loving Myself with Narcolepsy

Mindset
Maybe the most important lesson I have learned about feeling better is just loving myself with narcolepsy.  I'm not going to lie and say it's easy.  But I do think this is especially important for people with a chronic illness. I have ups and downs and I'm constantly working to try to do it more consistently.   It's easy to get into negative patterns and tear ourselves down. It takes a lot of practice to reverse that so that we are consistently giving ourselves positive messages. (more…)
Read More

Before Going Keto – Try This!

Diet, Lifestyle
Maybe at this point, you are thinking about trying the keto diet out for yourself.  Have you read about what you can do before going keto?  You may be feeling positive about your future and believe you are ready to take the plunge.  If so, that’s great! Go for it! If you are a bit more hesitant, here is my advice on some smaller changes you can make before going keto, or even deciding if it is right for you. Tips to try before going keto Eliminate Sugar from your diet [caption id="attachment_990" align="alignright" width="300"] Keto fruit pizza![/caption] Start with sugar.  First the big stuff, like sugary beverages and sugar-filled desserts.  Pay special attention in the morning and monitor your energy levels.  Later you can start reading labels and finding…
Read More

Positive Affirmations

Mindset
Sometimes I think about how much having narcolepsy has affected my mental state.  It is always on my mind.  It is always a limitation.  I can read all the tips for wakefulness in the world and work on my sleep hygiene but it doesn't matter unless I decide to change my own health.  While I can't cure narcolepsy and I no longer take stimulants to keep me awake, I have learned how to treat narcolepsy naturally.  And I trust that there is a mind body connection that I can tap into to improve how I feel. Today I'm going to tell you about this silly thing I like to do in my mirror as a natural narcolepsy treatment. Positive Affirmations. Maybe you think they are wacky or stupid or maybe…
Read More
Give Yourself Permission to Rest

Give Yourself Permission to Rest

Mindset
How many of us feel guilty when we can't do all that we think we should do? Why put yourself second? I don’t think you have to have an illness to have this experience. Whether it’s commitments at work, with your friends, or with yourself, sometimes you just aren’t up for what you have planned.  Most of us tend to cut out what we planned to do for ourselves to not let others down. Self-Care Benefits Everyone But if we don't take care of ourselves, we won't be at our best to do our jobs or to be a good friend.  PWNs (People with Narcolepsy) may be able to relate to this scenario: You go out with your friends when you are too tired. Later you have almost no recollection…
Read More
Gratitude Shifts Your Mindset

Gratitude Shifts Your Mindset

Mindset
Using gratitude to help manage your mindset can really have a huge impact on how much narcolepsy affects your life. What you focus on you feel If you don't believe me, try this exercise. [caption id="attachment_830" align="alignright" width="300"] Image by 1388843 from Pixabay[/caption] Take a moment to think of the worst day in your life, close your eyes and really visualize that day and feel the emotions you were feeling.  Stay there for a minute or two.  Open your eyes and notice the physical sensations in your body.  You may have clenched your fists, hunched your shoulders, or tightened your neck. Now think of one of the best moments in your life, where you felt a sense of accomplishment or pride for example.  Let yourself stay in that emotion for…
Read More