Scared of the Dark: The Narcolepsy Symptoms That Nobody Talks About

One night around age eight, I was lying in bed thinking of the fun I had had that day with my family. I opened my eyes slowly to see a huge, hairy, manlike monster hovering above me on the ceiling. His appendages stuck to the plaster effortlessly, like a giant spider, and I could see his gigantic teeth waiting to sink into my flesh. I was completely paralyzed. So much that I couldn’t even scream. I lay there on my Care Bear sheets, trapped in my own body, unable to even clench my fists, or turn my head away from the terrifying sight above me. He dropped onto my chest, and I could feel the enormous pressure of his weight. The next thing I knew, it was morning.

As a child, demons and ghosts weren’t just for Halloween, they were in my life all year round. Continue reading “Scared of the Dark: The Narcolepsy Symptoms That Nobody Talks About”

How Narcolepsy Lead me to be a Digital Nomad

Digital Nomad. It’s a label I’m not exactly fond of as it generally calls up images of social media influencers, relaxing on the beach, posting pictures that make everyone jealous.  While I do enjoy sharing my travel experiences, I am not quite on that level.  I am an English teacher who just happens to work online and use that advantage to travel as much as possible. But how did I get here? Was it a choice or am I really a hobo?"What you choose also chooses you." Kamand Kojouri Continue reading “How Narcolepsy Lead me to be a Digital Nomad”

The Most Elusive Drug for Narcolepsy

I believe I have tried almost everything available to treat narcolepsy. Like anyone, I have a strong desire to feel better. Like many people with narcolepsy, I am not lazy, I am actually overly ambitious and often do more than my body can handle and later face the consequences. I think I have worked pretty hard to feel as good as I feel now, but I always desire to feel better.
Continue reading “The Most Elusive Drug for Narcolepsy”