Blog

Cataplexy in a Cathedral

Cataplexy in a Cathedral

Narcolepsy, Personal Story, Travel
Sharing a plate of fried watercress, a heaping dish of tea leaf salad, and a bowl of eggplant curry, I found myself saying more about my chronic illness than I ever expected to disclose on a first encounter. I heard myself explaining things my body does in words I had never strung together verbally before. Maybe it was the second glass of wine, or maybe it was the humid air, the colorful Myanmar decor, and the attentive listener on the other side of the able. He seemed genuinely interested in how a person with narcolepsy had come to travel as a lifestyle choice. (more…)
Read More
Scared of the Dark: The Narcolepsy Symptoms That Nobody Talks About

Scared of the Dark: The Narcolepsy Symptoms That Nobody Talks About

Narcolepsy, Personal Story
One night around age eight, I was lying in bed thinking of the fun I had had that day with my family. I opened my eyes slowly to see a huge, hairy, manlike monster hovering above me on the ceiling. His appendages stuck to the plaster effortlessly, like a giant spider, and I could see his gigantic teeth waiting to sink into my flesh. I was completely paralyzed. So much that I couldn’t even scream. I lay there on my Care Bear sheets, trapped in my own body, unable to even clench my fists, or turn my head away from the terrifying sight above me. He dropped onto my chest, and I could feel the enormous pressure of his weight. The next thing I knew, it was morning. As a…
Read More
Digital Nomad or Hobo – Which label fits?

Digital Nomad or Hobo – Which label fits?

Mindset, Narcolepsy, Personal Story
Am I a digital nomad or hobo?  The label of "Digital Nomad" generally calls up images of social media influencers, relaxing on the beach, posting pictures that make everyone jealous.  While I do enjoy sharing my travel experiences, I am not quite on that level. But am I a hobo? I am an English teacher who just happens to work online. I use that advantage to travel as much as possible. But how did I get here? Was it a choice? Which phrase fits, digital nomad or hobo? (more…)
Read More
Accepting Narcolepsy

Accepting Narcolepsy

Mindset, Narcolepsy
I believe I have tried almost everything available to treat narcolepsy. I have a strong desire to feel better. Like many people with narcolepsy, I am not lazy. I am actually overly ambitious and often do more than my body can handle and later face the consequences. I think I have worked pretty hard to feel as good as I feel now, but I always desire to feel better. (more…)
Read More

People First Language Matters

Narcolepsy
Have you ever been called names?  Have you heard someone describe you in a way that didn’t sit well with you? Your first instinct may have been to go back to the schoolyard saying, "Sticks and stones may break my bones, but words will never hurt me." Unfortunately, that is not true. (more…)
Read More
Tips for Riding a Sleeper Bus in Vietnam

Tips for Riding a Sleeper Bus in Vietnam

Personal Story, Travel
Before my sleeper bus experience, I had never imagined being asked to take my shoes off as I entered a public bus.  But when you get on an overnight sleeper bus, it makes a lot of sense.  An attendant held out a black plastic bag for me to place my shoes in. I continued barefoot down the aisle to my very own reclined sleeper seat. (more…)
Read More
Healthcare in Auxiliar Program Spain

Healthcare in Auxiliar Program Spain

Narcolepsy, Personal Story, Travel
In 2014 I applied for the Ministries of Spain Auxiliares program on a whim. I didn't know the healthcare in the auxiliar program in Spain would be so great! I was also considering teaching in Asia for programs like EPIK and HESS. I had promised myself I was going wherever I got an offer first because I had to get out of the USA. The day the email came telling me I had a position in Spain I couldn’t believe it. I was going to be living in Ibiza! Everything happened pretty quickly since I got my carta mid-summer. I had to quit my full-time job, sell all my furniture, get the Spanish student visa in Chicago, and physically move to Spain! But of course, there were some worries. I…
Read More
Low Carb Snacks On the Go

Low Carb Snacks On the Go

Diet, Travel
We all know we work hard to maintain our ketogenic lifestyles while we are at home. So why not continue that habit when we travel? Sure it takes a little extra effort, but we do keto for the amazing health benefits, and we want to feel good and enjoy the trip whether it’s for work or pleasure. So here are some quick and dirty tips for keto travel if you are feeling uninspired! Remember not everyone has the same restrictions or macro goals so check the label before you pack!Low carb road trip snacksLow carb road trip snacks with a coolerKeto airplane snacksLow carb non refrigerated snacksLow carb snacks to buy at the grocery storeLow carb snacks that require preparationKeto product recommendationsKeto travel tips Low Carb Road Trip Snacks Beef JerkyNut…
Read More
Myanmar Visa Application

Myanmar Visa Application

Travel
If you are planning to visit Myanmar, it is likely you will need a tourist visa, or Myanmar Social Visa in order to enter the country. Do I need a Myanmar Visa? Don’t get confused by the conflicting information on the internet about this issue. If you are entering the country, you likely need to apply for a visa before you arrive no matter how short your stay. Although [caption id="attachment_752" align="alignright" width="300"] Image by Pexels on Pixabay[/caption] technically they will stamp the visa in your passport at immigration when you arrive, this eVisa processing is required before entering the country. Please do not ignore this as you can be denied entry and required to fly back to wherever you came from. Myanmar Visa from an Embassy You can apply…
Read More
5 Things You Can Do NOW to Manage Narcolepsy

5 Things You Can Do NOW to Manage Narcolepsy

Lifestyle, Narcolepsy
Can Narcolepsy be cured? While narcolepsy can still not be cured, there are lots of things we can do to manage narcolepsy.  There are so many different narcolepsy treatments available, we don't have to give up.  Everyone has to find the narcolepsy treatment options that work for them! Some people choose to treat narcolepsy naturally.  There are ways for us to mitigate our symptoms without taking narcolepsy medication. We want to beat the brain fog, fight fatigue, and take back control over how we feel.  This list is about short-term goals!  Try one or more of them NOW! (more…)
Read More
Keto Bread!

Keto Bread!

Diet, Lifestyle
If keto bread were easier, maybe it would be easier to stay keto.  Day 3 of Intermittent Fasting, and although I can't say I have any additional mental clarity, it does seem to make the mornings easier. I don't feel pressured to cook breakfast, and of course, there is no clean up then either. Cooking tired is always a drag anyway. Generally, I am unimaginative and eat fried eggs over and over again. [caption id="attachment_1160" align="aligncenter" width="225"] Photo by author[/caption] I have to say I was feeling pretty excited about my discovery yesterday! I have done some quick googling, but it doesn't seem like this is one of those commonly known keto things that I have just been missing out on. It is the easiest, quickest to make “keto bread” I…
Read More
Intermittent Fasting for Narcolepsy

Intermittent Fasting for Narcolepsy

Diet, Lifestyle, Personal Story
Intermittent Fasting for Narcolepsy Have you ever tried intermittent fasting for narcolepsy? I would love to hear about your experience! I’ve seen the term a million times in the keto community, but I always tell myself I am doing well enough with what I have. There is no need to make it more complicated.  I enjoy my early morning coffees and snacks throughout the day that fit my ketogenic diet. But lately I’ve been lacking mental clarity and I’m ready to try something new. I started looking into fasting, which seems very travel-friendly. I gave myself the weekend to wrap my head around it and decided I would dive in on Monday. Today is my first day. I have decided to start with the 16/8 method that I learned about…
Read More
Tips for Traveling With Narcolepsy

Tips for Traveling With Narcolepsy

Narcolepsy, Travel
Don't Travel Tired Do you worry about traveling with narcolepsy? Traveling tired can be dangerous. I feel like I am a smart traveler and pay attention to my surroundings. But once the sleep starts creeping in its easy to start letting my guard down and focus on staying upright.  (more…)
Read More
Dong Xuan Night Market, Hanoi

Dong Xuan Night Market, Hanoi

Personal Story, Travel
Dong Xuan Night Market was high on my list since visiting markets is one of my favorite things to do when I travel.  Of course I also like to browse grocery stores looking for new and interesting keto friendly foods, but nothing has the same ambiance as a local market.  Hanoi didn’t disappoint! The Dong Xuan Night Market opens at 19:00 (7:00 PM) on Fridays, Saturdays, and Sundays and is frequented by both locals and tourists alike. Cultural Experience at the Dong Xuan Night Market  The Dong Xuan night market runs all along Hang Dao Street in the Old Quarter of Hanoi and ends near the entrance of the Dong Xuan Market building.  Near the front of the building, there was a stage with performances of local music.  Both tourists…
Read More

EFT for Narcolepsy

Lifestyle, Mindset, Narcolepsy
When I say that I deal with pain every day, I think many people can relate.  We all have little aches and pains that plague us throughout our lives; that knee injury from high school, back and shoulder pain from stress, or recurring headaches that can't be explained.  I even include emotional pain in this definition. Physical chronic pain has become a widespread issue affecting more than 100 million Americans while remaining an invisible illness.  It doesn't receive attention because there is no way to compare levels of pain or measure how much it improves or gets worse. We all can believe our pain is worse than others' but that doesn't help us feel better. (more…)
Read More